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COMING UP She is the mother of an eight- year-old with tuberous sclerosis (TS). av SANDRA noun sbolunOyrmgxom Why is everything so expensive f9r__§pepia[ needs' children. Angel Neillfiasked. Neill would like to buy her daughter. Waverly. a special bike. It costs $5,000 new or $2,200 used. Neill, who is married and also has a six-year-old daughter. was recently bought out by her com- pany and is not working. "It's been tough." she admitted. To help pay for the bike. the Vulcan Meat Club is holding its inaugural Stouffville Meat Fest Sept. 13 in Memorial Park from 3 to 11 pm. Irish and Chinese dancers. along with a pop band and world music guitarists will fill Main Street Sept. 11. , 'TheWorld Music Festival rounds out the summer street festival sea- son. The World Music Festival began three years ago as a day-long event of food. music and dance in Memo- rial Park. But whether it was the rain or time of year. attendance just wasn’t there. said Mike Burns. this year's (toâ€"organizer. Meat Fest serves up aid for local causes So they changed the format and made it a street festival with con- tinuous entertainment on three stages from 5 to 9:30 pm. Admission is by donation at the I .‘A‘ ‘There’s really nothing] can do but raise money. Your heart goes out to the family. I’ve been lucky to have healthy kids.’ World Music Festival will take over Main St. some point. Stouffville door. “There’s really nothing I can do but raise money. Your heart goes out to the family. I've been lucky to have healthy kids,” said I. ]. Bouw- meister. co~founder of the Vulcan Meat Club. TS is a genetic condition char acterized by skin and central ner- vous system lesions. generally benign tumours and seizures. Waverly was diagnosed with TS at three months of age, While neither parent is a car- rier of the gene. TS can occur as a “spontaneous genetic mutation.” according to the Timberous Sclero- sis Canada website. Cause of the mutation remains unknown. How severely TS affects a per- son ranges from an individual never knowing he or she has the illness to developmental delays. “She's definitely not eight years old.” Neill said. noting Waverly is developmentally delayed. walks off balance and suffers from daily seizures. Last year. her grandmother, Deanna Soules. published a chil- dren's book - Waverly and the Blue Dolphins â€" to help raise money for 3 TS cure. deserves a full-fledged music festi- ‘vaJ. but it needs training wheels to get off the ground." Burns said. §ome oflhe entertainersinclude Amber (Irump. Bruce MacNeiI. (Zhinese lion. Irish and bollywood dancers. as well as guitarists. Admission is free. ‘Ar some point, Stoufl‘ville deserves a fullâ€" fledged musiefestival, but it needs training wheels to get off the ground.‘ « Sandra Bolan The Meat Fest. which is open to people 19 years of age and older. is also a fundraiser for Special Olym- pics. Last year. the meat lovers spon- sored three athletes. This year. they want to sponsor 10. Along with all the meat you can eat. there will be a microbrewer village. mechanical bull riding and cattle lassoing. . Inca] restaurants will provide food stations and bragging rights will be handed out for best foodie. There will be live‘ bands and a silent auction with Maple Leafs' paraphernalia and dinner vouch- ers. A [97! modified meaty mix machine serve up lemonade. For more information. go to meatfeslstouffvillecom l. I. Bouwmeister (right), of the Vul- can Meat Club, and Special 0|ympi~ an Matt Nighswander get ready for Meat Fest at the Meat Merchant. STAFF PHOTO/JIM MASON WNYAL FOOD MAM PARTSOURCE FERLA DENIAL PUSMART PNNCESS AUTO REAL CANADIAN SUPERSYORE RED PLUM REXALL 19