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stouffville thursday april 212005 serving the community of whitchurchstouffville b 36 pagessi including gst 5 vandals suspected in fire that destroyed trailer dreams opinion 6 calendar 25 sports 30 classified 32 stouffville dad wants relief from fatal disease province wont fund expensive medication by chris traber staff writer gerry irwin says hes living on borrowed time time that until last february was relatively qualitative and quantitative until the province further procrastinat ed on its decision to fund a new drug used to treat his rare disorder mr irwin is one of an estimated 300 canadians with fabry disease a genetic enzyme deficiency that leads to the accumulation of mole cules around vital organs to the point of strangulation each patient reacts- differently in mr irwins case the malady has led to several strokes a heart con dition hearing loss and life in a wheelchair fabry is considered a fatal dis ease said the stouffville father of two first diagnosed with the illness in 1989 they say itll kill you by age 50 im a month away from that birthday i dont know if im in the middle or late stages of the dis ease in the early 1990s the former bank computer developer partici pated in fabry research conducted in new york city the disease forced him to take permanent dis ability leave in 1994 there were no drug treat ments at the time he said doctors could only treat the symptoms thankfully my employer had policies that provided disability payments we couldnt have made it without that because it costs money to make a home wheel chair accessible and to convert a car to hand controls in 2001 usbased transkaryotic see premier page 11 time m im hip ssc mm staff photosjoerd witteveen gerry irwin of stouffville has fabry disease a fatal illness that strangles organs he wants the province to pay for drugs that cost 25000 each for twice month ly infusions they say itll kill you by age 50 said mr irwin 49 no contamination from duck plant overflow by joan ransberry staff writer a 54million gallon sewage spill in northern whitchurch- stouffville friday has triggered a call for safety inspections at lagoons the sewage material identi fied as agriculture waste came from a lagoon tied to a private treatment plant system at king cole ducks at warden avenue and aurora road i was quite in awe of the mess said whitchurch- stouffville mayor sue sherban who visited the site saturday morning mayor wants answers while tests results from the spill show no signs of e coli contamination mrs sherban wants answers in regards to the structural safety of lagoons in the municipality including the four at king cole ducks once a year these lagoon ponds should be checked for erosion mrs sherban said we should make sure the company doesnt get a permit to operate until the inspections show its safe im looking for sue sherban in awe of mess at king cole ducks mayor wants annual inspection of facilities answers who was responsible for the lagoons at king cole ducks whitchurchstouffville fire and emergency services environment ministry and york region officials were called to the spill about 1030 pm it was a significant spill ministry spokesperson john steele said the manure mate rial went into the ground area ditches and water courses muskrats may be responsi ble said king cole spokesper son patti thompson burrowing muskrats have see duck page 26 wss rtjjjjsm t v cd u r hometow ll ford s to re- vsgaslsssas 7- 1113 x new 05 escape xls 4x4 n lit mwllfc ft m 31 dk lit houston uni icthni cnbn i rm r i iiteijfssh ilm ww cash price r mp v- 12 at tins price cashrpurchase pnce plus madmin ieg ai applicable taxes arid iicehsirrg 57b6 main st 305baoa www billhbustonf stouffville 541 ordcom ym vfc tt diamonds canada arthau 7f fewellersj 6312 main stj stouffville 9056404646 uuwjiandpidcdfiamoncom