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“We offered the research department at Sick Kids Hospital $20,000 to research her condition." said Michelle. "It was money raised from a benefit we had in Alaina's name. But the hospital declined the offer saying no one is interested in pursuing the research because Alaina's case is only one of her kind. It isn't worth their time" case is so rare that her condition is not recognized. There is no foundation for her parents io find support and there is no research being done towards finding a cure. Five-yearâ€"old Alaina Priore was born with a genetic condition that affects her heart. lungs and stomach and puts her life at risk. She is the only person in Canada to be diagnosed with the combined health problems of Abcaa protein surfactant deficiency. pulmonary hypertension, atrial septal defect (a hole in the heart) and extreme reflex disease. When Alaina was born. doctors told her parents. Michelle and Rocco. that she wouldn't live beyond a few months. Her The club welcomes new players aged 18 and up and games will be played twice a week on a matted cricket pitch with the traditionalhard ball. The cost is just $100 for the season, which runs until Sept. 12. Contact'Davej at. siouffvillecrlcketclub© gmail. com or 416- 708- 6250 for more information. On May 27, Stouffville Cricket Club launched its 2015 season at Bethesda Park on Bethesda Road east of Ninth Line. Bruce Stapley photos On May 7, the Latcharr Gallery hosted its My Art Battle, 3 live painting competition to celebrate the creativity of community artists ranging in age from 10 to 20. Twenty- three contestants, some working in pairs, were given a time limit to create a painting and the results were spectacular. The winner was Celina Lea. The Great Brushâ€"Off Howzat! vttle, a live rtinon to ‘ :ativity of c¢ ranging in . 20. Twe‘ By Kinjal Dagli Shah Support Lacking For Rare Disease Research the Latcham :Ied its first i live painting to celebrate of community 9 in age from Twenty-three some working a given a time a painting and" Stouffville family struggles to help ailing da‘ughter "Over the years. we have stopped expectrng (help) and learned to rely on ourselves We just Work harder in our busrness and try to keep up. But the fact is that things are very costly and nobody The couple have learned to live with the tact that they may not raise much money in Alaina's support. But 'hey are far from givmg up. "I think people are reluctant to give because .her condition isn't well-known and they don't see how sick she is. There's also some hesitation because we appear to be a family that isn’t quite in need." added Michelle. who runs Country Casa Montessori Daycare in Stouftvillet "We didn't receive a single donation. The only donation on the page was $50 from an anonymous person. who in reality was me trying to just get people going." said the mother of two. When Alalna was 18 months old. Michelle set up a 'golundme page In the hope that a crowd lunding effort would draw attention to her daughter‘s rare condition. as well as raising money to offset the expenses the family were incurring in medical bills. Members of the Stouffville Cricket 'Club prepare for the‘ 2015 Season at Bethesda Park. one of them. Cholesterol is NOT CUSTOMER APPRECIATION last m at MMMWWW* q W‘mmmm Fact: Up to 8§% of the cholesterol m your bodlfls made by the [WEI t'herefore a healthy vaer [S meal to cholesterol control Stouffville Free Press - june 2075 ornruuym» I (90., EFF