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16 2tf0euhmbme m nxrjbtaijax 85267 1 1 steana l00se rugs rr jlr broadloom yieanipg- uph 3m scotchauard drug fight lifeordeath battle by roy green a battle between a drug com- staff writer pany d the ontario gov- rick sgroi says hes living ernment over the costly ther- on borrowed time caught in apy he needs to stay alive poimtiac buigk m mis unionville rvjni ivrplvls-vjylv- 4630 hwy 7 at kennedy rd 9054771666 unionvillemotorscom new truck price plus freight uxm license and admin cash price includes all cm programs oac o unionvitlel s 16th avenue hwy 407 the richmond hill man suffers from fabrys disease a rare genetic disorder that causes fatty buildup in the heart and kidneys until they eventually collapse for the past 312 years he has received twice- monthly treatments of an enzyme replacement thera py called fabryzyme at north york general hospital but drug company genzyme canada has stopped providing free fabryzyme treatment for the 30 ontarians with the dis ease and wants the provin cial government to start pay ing because the therapy was approved by health canada last year ontario refuses to fund the treatment which costs 25000 per month and is awaiting a report from an expert panel that earlier rec ommended fabryzyme not be covered by the province although health minister george smitherman blames genzyme for withdrawing the treatments mr sgroi is furious at the governments refusal to pick up the tab mr smitherman prom ised to fund treatments after the death of a kitchener man with fabrys disease mr sgroi said mr smitherman wrote to the mans wife and assured her that enzyme therapy would be approved but now two of my friends with the disease have been cut off and their symptoms are coming back after only two weeks mr sgrois drug compa nyfunded treatments are due to end in june and he march 456 10th annual fears a return to painful symptoms that plagued him for much of his life before he began receiving enzyme replacement therapy i dont need to wait for any report i know the treat ment works he said more than 50 per cent of the fatty substance disappeared since i began treatments yesterday a genzyme spokesperson said mr smithermans comments that the company was con tinuing treatment to patients in british columbia but not ontario were incorrect and misleading oak ridges tory mpp frank klees who forced a special debate on the subject in the legislature tuesday said mr smithermans sug gestion that genzyme con tinue free treatments was an insult to mr sgroi and other sufferers this drug company as much as the minister wants to demonize it has already done its part in providing it free during a lengthy trial period mr klees said there is always an under standing the drug company will get paid for the drug its just a foolish and very insult ing comment on the part of the minister particularly in the context of his promise to fund the treatment during tuesdays debate mpp jim brownell mr smithermans parliamentary assistant saidthe committee studying the treatment had been provided with addition al information on fabryzyme and is expected to make a rec ommendation this spring show presented by the toronto rstar discover the newest innovations for the cottage seethejatest cottage designs first major cottage show of 2005 terrific money saving bargains on just about everything for the cottage 2 off per couple b 2 off per couple discount coupon admission 8 present this coupon and show hours receive 2 oft per couple or fri 1 pm8 pm children 1 off per single admission sat10am6pm 12 under seniors are half price on sun 10am5 pm free friday coupon not valid for seniors on friday the cottagefest show i march 456 indoors markham fairground buildings mccowan rd north of major mackenzie lots of free parking wwwcottagefestcom s2 off per couple 1 1 m 2 off per coupl iproudlyprtjducedbyjenkinsi l productions 18004651073 hey surfs up jp saturday feb 26 at mj the grand opening f the tj f m r 100 rmgvvood drive unit 2 stouiffvisle 10amto5pm come be the u in our luau join us for 25 off everything in stock the latest surf ing dvds free giveaways something to eat and lots of talk about travelling ph 9056406844 checm out our web site at wwwcostanadacom