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wednesday november 23 1983 fourth section home dialysis makes her life easier by christine koserski staff reporter joan good has a friend she cant do without a friend she depends on a friend she sees regularly every three maybe four days treated with respect by the entire family this friend even has a room in the good household but although she literally cant live without her friend mrs good feels guil ty grateful and resentful of the rela tionship she feels guilty because of the high cost of keeping the friend a kidney dialy sis machine in her home its a costly thing to keep a patient on dialysis says mrs good who esti mates 20000 is spent annually it makes me feel guilty thats why i want to put an effort into the kidney founda tion her dependence on the machine ties her to it with an unrelenting hold she must undergo dialysis every three to four days its a burden its a burden to thefamily she says we finally got to the stage where we could afford to travel but i cant leave for more than four days somehow they manage to work around it she and her husband ron recently went on a fourday trip to las vegas and as inconvenient as it may be the machine is an improvement over going to a hospital for dialysis youre on their schedule she says and you have to adapt to it its also costlier than home dialysis she adds because youre taking up hospital space and the staffs time most of all she feels grateful to her mechanical friend for the heightened quality of life it gives her dialysis is great i feel grateful she says a couple of years before i went on it as my kidney function de creased i felt tired not motivated i came off looking lazy on dialysis for just over a year it is only now that mrs good feels well enough to get involved in the kidney campaign but once the petite browneyed 47- yearold decides to get involved she goes all out she is the new team leader for this years local campaign drive for the kidney foundation of canada she admits she really doesnt know that much about the kidney drive but b she has had plenty of experience in orga nizing and volunteer work in winnipeg where she was constantly busy in the community and church for the 15 years she and her family lived there it was there that the family was tragi cally and irrevocably affected by kidney disease the goods youngest daughter died at the age of 14 after a lifelong bat tle with a rare syndrome which even tually led to kidney failure about a year before her death machines smaller mrs goods father also died from kid ney disease in the late 50s when dialysis machines were not as common and where if one existed it took up an entire room in a hospital mrs goods machine is about four feet high and sits inconspi cuously in a corner of a small basement room from winnipeg the goods moved to edmonton for two years before coming to markham when mr good who works for a pharmaceutical company was promoted and transferred here the couple lives on a quiet street in markham with their 20yearold daugh ter susan both she and her father are joan good adjusts a setting on the kidney dialysis machine at her home which she must use at least twice a week mrs good is the new markham team leader for the kidney founda tion of canada christine koscrski trained in assisting dialysis a patient must never undergo the process alone if their blood pressure goes too high or too low they are in danger of losing con sciousness or becoming ill susans twin sister lome is away studying at queens university shan the eldest at 22 just got married this summer mrs good proudly shows pic tures of the wedding as she flips the pages in her photo album you can see that her left forearm is noticeably larger and misshapen dialysis patients must have surgery to attach a vein to an artery in their arm this is the spot where mrs good inserts two needles one each for fluid coming and going ev ery time her blood is cleansed there has been an imperceptible change but a change nonetheless in mrs goodss life recently it revolves around the constant anticipation of a phone call that could come in two days or two years within hours of that call mrs good will be rushed to a hospital for a kidney transplant the decision to put herself on the list of waiting patients was a hard one to make a transplant has risks she says so has dialysis but there are different kinds of risks its kind of scary thereare the risks that always accompany major surgery but there is also the risk of bone deterioration and other damage from injection of powerful drugs such as steroids and then theres always the chance the body will reject the donor kidney a transplant is a chance for good years without the expense and trouble of dialysis she says and adds with a shrug but different people react dif ferently its basically the luck of the stars the recent trip to las vegas was made to celebrate the addition of her name to the list of about 600 patients waiting for transplants in ontario there are appro- xiamately 950 people on dialysis in ontario mrs good takes 13 different medica tions daily partly because she also has asthma and is on a strict diet low in sodium protein and potassium and any thing in fact that affects the bodys blood pressure sometimes she is forced to go off her diet at a restaurant for instance i really pay for it she grimaces my blood pressure goes up and i get killing headaches for now she is putting aside her own health problems and getting on with the job at hand which is recruiting and organizing volunteers for the campaign drive the goal this year is to raise 200000 in the toronto area double that of last year trudy mccallum district cam paign director hopes to raise 6000 in the village of markham alone most of it is raised by canvassers going from door to door the campaign reaches its peak in march kidney month the money goes to research patient services and a dialysis camp for children in northern ontario we badly need volunteers she saysand we also need volunteer reg- istered nurses for blood pressure clinics clinics like the one recently held at markville shopping centre screens peo- pie for potential kidney problems by checking for unusually high blood dress- ure one of the warning signs of kidney- disease ten per cent of people checked at mall clinics are found to have hypertension and 20 per cent are borderline accord ing to patty blevins health services co ordinator for the kidney foundation of canada they are advised to see their doctor anyone interested in becoming in volved in the kidney campaign can call mrs good at 2947082 those in the un- lonville area can call local leader bar bara warden at 4775137 committed to the cause mrs good is putting her hardearned energy into the- campaign irregardless of her illness i try not to dwell on it she says i do what i ha ve to do for it but i try to live my life aside from it v 8y symptoms more frequent urintionriiculrri sgj3rnncwunjej fsiiigpflbevmw a s5 piimj 4 l- rf jti si- bciowthc ribs ijrtiidris nioprattdj movemen ttht iritis not muscle pl rt iflvpmetd ibriis because of another cusesnch runniiinfcctomfisa markham minister has many talents by christine koserski staff reporter frederick a styles is known in mar kham as reverend at st andrews un ited church but hes known all over the world as an author of books and in ontario as an artist and singer having just received his doctoral de gree in ministry the 48yearold rev styles has travelled a circuitous route since he first left home in collingwood to sing in toronto nightclubs at the age of 15 along the way he has managed to fit in writing artwork broadcasting and journalism as well as singing and song writing two years ago he landed in markham under somewhat bleak circumstances tom head who was then in charge of pastoral care area at st andrews had just died and the man rev styles re placed don parr had been there for 14 years people get attached to someone after such a long time he says it was an atmosphere ofgloom the first few months but he enthusiastically tackled the problem of getting to know st andrews large congregation of 700 to 1000 fami lies im still working at it he says i know the inner circle quite well but its harder to get to know those on the periphery mmx art is one of rev styles many in terests he has made pieces of symmog- raphic art heavystring art for the church and has sold several on commis sion a sample entitled madonna and child sits in his office leaning against his desk its an interesting pastime he says and with a laugh adds most of it gets done in the middle of the night after a late board meeting when im trying to unwind another string art piece called cross and crown of thorn is used in services during lent he works mostly in string but has attempted wood and is working on a wallhanging with the map of canada carved out in relief on wood with art serving as a pastime rev styles real passion seems to lie in writ ing he has authored several books on religious matters during his career his first effort a secular marriage service was written as a response to what rev styles felt was a need for secu lar marriages within the church i offered it to the united church be cause i found i needed it in my ministry for people who had no connection with the church he says i wanted to offer a way for them to be married with in tegrity and yet not compromise them selves with things they dont belie ve in he says he knows of at least two cou ples married in this way who later joined the church it leaves the door open he says it seems to me theyll come back to some one who has shown compassion and understanding its for those reasons that he is at the moment working on rites of passage for a secular society its a service performed outside the church for people who recognize the need for ritual and ceremony but who nevertheless dont belong to a church and maybe dont even have a particular religious leaning he explains it leaves the door open he was surprised by the success of his first endeavor i didnt even expect to see my name on it he says kwhen he first presented it to the un ited church which publishes its own material they told him it was a good idea but it wouldnt sell and gave him permission to go ahead and do it on your own and he did just that putting up his own money and had it published it was a bit scary he says i thought id have thousands of copies lying around in my basement he didnt have to worry with the help of some publicity from a toronto news paper and wire services the book sold out and is now in its sixth printing it is being read all over the world from au stralia to places as remote as fiji i think that indicates something he says its meeting a need when the united church celebrated its 50th anniversary in 1975 rev styles wrote and directed holy smoke a musical revue based on the development of the united church in its 50 years when he looked for songs to include in a collection for a tape on the life of jesus entitled go tell everyone he ended up writing five of the 10 songs himself the only songs i could find were so drippy and ghastly i wrote some my self he says he still writes songs for children when i have a message to convey to children and i cant find an appropriate song ill write one he saysyou can talk to children for an hour about some thing but if you can teach them to sing it they pick it up very quickly being a minister seems an unlikely calling for a nightclub singer and at the time it was the furthest thing from his mind my family was very religious he says and i turned my back on it but his experience sailing the great lakes as a deckhand on a freighter changed his way of thinking i encountered the problems of other sailors he says some were hopeless alcoholics at the age of 28 i tried to help but i couldnt do much i 11 s i i i fmightclub sineeru while singing in nightclubs his table always seemed to be full of people with problems he says i started to take seriously the responsiblity of helping others it was while he was editing a newspap er in manitoulin island that he decided to enter the ministry but the church wasnt too enthusiastic about my back ground he says laughing eventually rev styles began study ing theology at queens university after a years preparatory work to make up for dropping out of high school after receiving his masters degree in theology there he went on to a three- year study program for his doctorate in ministry at drew university in madison new jersey which entailed weekly visits to queens the third year was spent on a congregational project for the projectrev styles designed what he calls spontaneous evangelism a new style of evangelism in a liberal church he explains its for those who dont want to intrude on peoples privacy but nevertheless want to share their views another project he is working on at- present is a collection of sermons by some of the best preachers in canada the methodist church gave the united church structure he says and the pre sbyterian church gave its policy the way its run but the congregational churchs gift which is often forgotten he explains were the best educated and most articulate preachers in canada i would like to celebrate that by collecting the sermons from about 20 preachers the church rev styles believes needs to be more involved in secular activities my church is a worldly thing that fo cuses on people where they are where they do their living not what happens to them after they die he says with all the fervor of a man with a mission all we can do is live the life given us now if we can do that the rest will take care of itself rev frederick a styles of st andrews united church in markham is also a writer and artist here he stands beside one of his creations made of- heavy string entitled cross and crown of thorn vfsy j 1 j n er p v 4 ihif land division committee splitting ki 4- r v4 rf i t 4 r